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What If It's Not Alzheimer's?: A Caregiver's Guide to Dementia (Updated & Revised) | 
 enlarge | Creators: John Q., M.d. Trojanowski, Lisa Radin, Gary Radin
Publisher: Prometheus Books
Category: Book
List Price: $22.95
Buy New: $13.56
You Save: $9.39 (41%)
New (30) Used (3) from $13.56
Avg. Customer Rating:  9 reviews
Sales Rank: 44869
Media: Paperback
Edition: Revised
Number Of Items: 1
Pages: 360
Shipping Weight (lbs): 1
Dimensions (in): 8.9 x 5.9 x 1
ISBN: 1591025842
Dewey Decimal Number: 616.83
EAN: 9781591025849
ASIN: 1591025842
Publication Date: March 27, 2008
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Book Description
Includes Vital Information on Frontotemporal Dementia (FTD) Foreword by John Q. Trojanowski, MD, PhD, Director, Alzheimer's Disease Center, University of Pennsylvania Hospital Although the public most often associates dementia with Alzheimer's disease, the medical profession now distinguishes various types of "other" dementias. This book is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias. The contributors are either specialists in their fields or have exceptional hands-on experience with FTD sufferers.Beginning with a focus on the medical facts, the first part defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The next section on managing care examines the daily care routine including exercise, socialization, adapting the home environment, and behavioral issues. In the following section on caregiver resources, the contributors identify professional and government assistance programs along with private resources and legal options. This newly revised edition follows recent worldwide collaboration in research and provides the most current medical information available, a better understanding of the different classifications of FTD, and more clarity regarding the role of genetics. A completely new chapter 5 enlightens the reader about the various drugs that are now being used with FTD patients and also delves into a number of nonmedical options. The wealth of information offered in these pages will help both healthcare professionals and caregivers of someone suffering from frontotemporal dementia.
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| Customer Reviews: Read 4 more reviews...
 What If It's Not Alzheimer's? June 5, 2008
Very helpful book with many "tips" and list of resources for dealing with a devastating illness that has a devastating impact on family members and friends. Helps to know what to expect and how to cope. Highly recommend for anyone (friend or family) dealing with a loved one with dementia.
Important book May 27, 2008
After I read the book that I purchased for myself, I purchased copies for every other effected family member. It helps so much with understanding what is going on with this bizarre disease.
So helpful! February 26, 2008
2 out of 2 found this review helpful
My sister is 39 had was diagnosed with FTD, probable Pick's Disease. My mother is her full-time caregiver and I gave this to her for Christmas. She said it's the most helpful, interesting book she could imagine on the subject. It's great to know you're not alone when there's such little information available!
Great resource May 13, 2007
3 out of 3 found this review helpful
I have found this book to be very helpful with alot of information regarding FTD.... It has been a great help
Dementia other than Alzheimer's March 25, 2007
16 out of 16 found this review helpful
I wish I had found this book over a year ago. Statistically the largest portion of people diagnosed with dementia are diagnosed with Alzheimer's Disease. The sad truth is that many people diagnosed as having Alzheimer's are mis-diagnosed and don't have Alzheimer's but some other form of dementia. Dementia is not a disease itself but a symptom of something else going on. Just like pain is not a disease but caused by other things. Many things can and do cause dementia: brain tumors, metabolic conditons, trauma, fluid on the brain, nutritional issues, alzheimer's, frontotemporal lobe, lewy bodies and on.
This book talks about other causes of dementia besides Alzheimer's. It focuses more heavily on Frontotemporal Dementia or FTD. There is growing evidence that a large percentage of people diagnosed with Alzheimer's actually have had or do have FTD. This was the case with my mother. So what's the big deal? Both kinds of dementia are debilitating and have no cure right? Well the big deal is when someone has Alzheimer's they can give them medicine that helps maintain memory for about 12-18 longer than without the meds. With FTD if you give that person the Alzheimer's meds because of a mis-diagonosis it can cause severe behavior problems. There is nothing you can give for FTD. I personally witnessed this problem with my mother after being put on an anti-Alzheimer's med. She had to be taken off of it since it caused some severe psychotic behavior. Had I or the doctor at the time know more about FTD there would not have been a false diagnosis of Alzheimer's. Why? It really is not that hard to make a proper diagnosis of FTD if you know and the doctor know what to look for. FTD begins with behavior issues and then comes memory impairment where Alheimer's begins with memory impairment. Plus Alzheimer's tend to affect the Parietal and Temporal lobes of the brain first and FTD starts with the frontal and temporal lobes first. Over time however it is not easy to tell the difference. The best thing when in doubt is knowing the patients background and detailed history, neuropsych testing and a CT or MRI scan to look for where the shrinkage is taking place in the brain first.
Again this book is a great resource and help to anyone wanting more info on dementia and specifically if you wonder is it really Alzheimer's. It is the only book like it out there and it is not just fluff. It is also highly recommended by the Association of Frontotemporal Dementia out of the University of Pennsylvania in Philadelphia. All thumbs up on this one.
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